BOLD BREAKTHROUGHS 2026 CSNK2A1 Foundation Virtual Run, Walk & Roll

Saturday, October 10, 2026 • Burlingame, CA
Registration Closed
Register Now — From $30.00

When is BOLD BREAKTHROUGHS 2026 CSNK2A1 Foundation Virtual Run, Walk & Roll?

BOLD BREAKTHROUGHS 2026 CSNK2A1 Foundation Virtual Run, Walk & Roll takes place on Saturday, October 10, 2026 in Burlingame, CA.

What distances does BOLD BREAKTHROUGHS 2026 CSNK2A1 Foundation Virtual Run, Walk & Roll offer?

BOLD BREAKTHROUGHS 2026 CSNK2A1 Foundation Virtual Run, Walk & Roll offers 2 events: BOLD BREAKTHROUGHS 1 Mile Run, Walk & Roll, BOLD BREAKTHROUGHS 5 Mile Run, Walk & Roll.

Event Distance Price
BOLD BREAKTHROUGHS 1 Mile Run, Walk & Roll 1.0 mi $30.00 Register
BOLD BREAKTHROUGHS 5 Mile Run, Walk & Roll 5.0 km $30.00 Register

How much does BOLD BREAKTHROUGHS 2026 CSNK2A1 Foundation Virtual Run, Walk & Roll cost?

Registration for BOLD BREAKTHROUGHS 2026 CSNK2A1 Foundation Virtual Run, Walk & Roll starts at $30.00. Prices vary by event distance.

Where is BOLD BREAKTHROUGHS 2026 CSNK2A1 Foundation Virtual Run, Walk & Roll held?

BOLD BREAKTHROUGHS 2026 CSNK2A1 Foundation Virtual Run, Walk & Roll is held in Burlingame, CA at 1395 Marsten Rd..

About BOLD BREAKTHROUGHS 2026 CSNK2A1 Foundation Virtual Run, Walk & Roll

JOIN US!  Join our worldwide Okur-Chung Neurodevelopmental Syndrome (OCNDS) community on OCTOBER 10TH and OCTOBER 11TH for our BOLD BREAKTHROUGHS Run, Walk & Roll for OCNDS! This event will help raise awareness and fund research for OCNDS, an ultra-rare genetic disease that affects individuals worldwide. IF YOU SIGN UP AFTER SEPTEMBER 18, WE CAN'T GUARANTEE YOUR RACE SHIRTS WILL ARRIVE ON TIME.

DO I NEED TO RUN TO PARTICIPATE?  Absolutely not! This is called a run, walk, or roll. Our goal is for you to safely come together with others to bring awareness to OCNDS. Invite some friends and family to join you to come together for OCNDS. You can meet at the park, your street corner, the beach, or anywhere - get out of the house and move! You can RUN. You can WALK. You can ROLL whether on a bike, wheelchair, walker, scooter, roller skates, or rollerblades.

What is our theme for the year? Our foundation theme for the year is BOLD BREAKTHROUGHS. The overarching goals of the foundation are to:

  1. Fund Research to Find Treatments/Cure
  2. Support Families
  3. Raise Awareness
  4. Advocate for Change
  5. Fundraise to support our efforts

We can’t do this alone, and we thank you for your commitment to come together to make the lives of those living with OCNDS brighter. Please send us photos of you with your family & friends moving toward BOLD BREAKTHROUGHS to bring awareness to OCNDS. 

WHY RUN, WALK or ROLL? WHY DONATE? OCNDS is a lifelong condition that significantly impacts the lives of those affected and their families. We’re raising $50,000 to support research focused on the top priorities identified at our recent conference—where families and researchers came together to chart the future of OCNDS. These include sleep, speech and language, anxiety, intellectual disability, GI health, and drug repurposing. Your support will help turn these priorities into progress.

HOW TO SIGN UP:

Step 1. Register to run/walk/roll the virtual 5k or 1 mile, and invite your family and friends to join! Give your t-shirt size and mailing address.  IF YOU SIGN UP AFTER SEPTEMBER 18, WE CAN'T GUARANTEE YOUR RACE SHIRTS WILL ARRIVE ON TIME.  

Step 2. Invite your friends and family to join you and register.  

Awards to be given for: *Loudest Family/Individual on Social Media, *Top Fundraiser, and *Most Creative Forward Together Photo on Facebook/Instagram

PRICING: $30 per adult registrant, $18 per child (2-18) registrant

Register Now — From $30.00

Swag

Each registration fee includes (1) BOLD BREAKTHROUGHS Event t-shirt and (1) digital race bib.  For example, if you register (2) adults and (2) kids, you will receive (4) t-shirts and (4) digital race bibs.  Due to shipping challenges, we can only guarantee T-shirts for those who register BEFORE SEPTEMBER 18, 2026

Swag & Giveaways

BOLD BREAKTHROUGHS 1 Mile Run, Walk & Roll: Unisex T-Shirt
BOLD BREAKTHROUGHS 5 Mile Run, Walk & Roll: Unisex T-Shirt
Register for BOLD BREAKTHROUGHS 2026 CSNK2A1 Foundation Virtual Run, Walk & Roll
From $30.00
Register Now